OVERLOADED
I’ve been guilty of
Indecent exposure…
Laid my cards naked
On the table for all
A suicidal kind of
Over-disclosure
Picture me the loose cannon
…with a lot of balls
I wish for once
To extinguish the flames
My head is fried;
My body’s burning
With shame
The lines used to define
The shape of things
Were never mine
How can I win?
I do not know the game
-Dallas Volk
Community blog since 2013. For the marginalized who wish for change and increased awareness; autistic, 'ADD' etc, complex chronic illness, trauma/bullying/mental health/addiction, supporters too. Share experiences i.e. self discovery, getting through, life lessons, info for awareness, discrimination, human rights, how you've been affected, how/what you'd like to see change. Anonymity if requested. Send *titled* pieces to bohemian.miss@gmail.com
Monday, July 28, 2014
Underdog - A poem by Dallas Volk
UNDERDOG
Once I had a mission
Pushed my little pistons
And worked real hard
When I blew a gasket
They stuffed me in a basket and
Sent me to the scrapyard
Had a lot of steam
Did the Tool & Die scene
For the American Dream
Until they cast me as
The Villain
I froze up… unwilling
Like a rusty machine
Made myself some mistakes
Had a ton of tough breaks
That withered me dry
Drained of every last hope
Strung out like a old rope
Wrung every tear from these eyes
But don’t throw in the towel yet
There’s still some fight left
In these tortured bones
Crawling for the finish line
Maybe for the last time
Please don’t leave me
Out here alone
-Dallas Volk
-Dallas Volk
Monday, July 21, 2014
Saying "Neurotypical" would only be bigotry if THEY where the minority ...
I support neurodiversity. Yes, yes it can be used in a derogatory way. Is it bigotry, to use such a term? Even as an insult? No, it's not bigotry. Well, a lot of people will say it can't be, but I think it is possible for it to be bigotry. For it to be considered bigotry, first, you need to build a time machine. Then (back in time), you need to somehow alter to population so that neurotypicals are the minority. And when neurotypicals are (for generations) subject to segregation, humiliation, inequality, along with rhetoric like "epidemic" or "cure the disease" and just general cruelty. If someone on the spectrum, who will at this point have this massive support structure in society, says something like "Oh, those neurotypicals, they sure do have some funny ideas don't they?" Then, THAT, would be considered bigotry.
-Moromillas Radec
-Moromillas Radec
Sunday, July 13, 2014
Poetry by Dallas
Enjoy this wonderfully poignant poetry, by the talented and passionate Dallas Volk. Dallas is a newly discovered member of the growing Autistic Community. She is also openly transgendered. What many don't know is that being gay, lesbian, bisexual and/or transgendered is actually more common in the autistic community. Dallas is an inspiration in "coming out" with her discovery of being on the spectrum. She and other LGBT people opening up about their Autism Spectrum Condition, may lead other LGBT folks to discover that they too may be on the autism spectrum. Welcome, and thank you Dallas!
My name is Dallas S. Volk I’ve been challenged all my life, but only recently discovered that my condition is most likely a form of autism. Writing poetry is an important component of my personality; it is a coping mechanism, my unique form of expression and a means of sharing what actually goes on in my head. What makes it so intensely personal, is the confessions and over-shares that can be read in-between the lines. Sharing this work is the hardest thing, because I’m also transgendered. For a long time, I believed I should not be heard or read because of low self-esteem. Now, as my secrets are laid bare, I hope that my dignity will be allowed to remain.
I’ve got a jukebox brain
When it plays your tunes
It drives my heart insane…
And I tried not to let it fall
Old Soul
You have a way with sound
When it fills my ears
My world turns upside down
Alone at night, it’s hard to right it all
Tried my best to come unglued discreetly
Should have never offered love so sweetly
Far too easy to be crushed completely
To wear my heart out on a sleeve
Big kid
Trying to fill his shoes
Doesn’t mind stepping on a flower or two
In the course of his day
He’s merely trying to find his way
Sullen girl
With a grown man’s face
How did I let my soul get stuck in this place?
Must shed the skin that ties me to this phase
And let it slip away
Maybe I’ll be someone else… someday.
-Dallas Volk
Sweet nicotine
poisonous pal
I’ll not forget your scent
Your wispy form
Enveloped many hours
Of my time
But now I fear
To die with every penny
Sorely spent
Too late
To trade tobacco
For a cask of wine
-Dallas Volk
CASTAWAY Feeling lost and alone I’m in a dark place Need to be on my own Please don’t look at my face Search not for answers When I’m in this space You wouldn’t like me It’s no fun being sad Why risk making worse What’s already so bad? Close your eyes, turn away Something dies everyday Don’t be mad If I step into fire Maybe I’ll be reborn Could it cauterize wounds In a heart badly torn? Or would my soul die in the light Bright and warm? Never try swimming Through the tears in my eyes Any vessel of reason Is sure to capsize Say a prayer… if you’ve any to spare Then bid your goodbyes
-Dallas Volk
MAKE BELIEVE You may think that 40 years I was a male No such thing As a sex change for the soul In silence I endured Such crazy pain- but no one knew! Until my presentation Had grown pale
But maybe I’m malingering My concept of the truth Why would you believe What can’t be seen? Talk of torment Through a torrent of self-pity Smack me silly! I’m too beside myself To furnish proof
-Dallas Volk
In reference
To preference of pronouns
And such
Don’t use Him, His and He
When referring to Me
I would be touched
Rather like very much
If you’d replace those
With Her, Hers And She
In retrospect
Of self-image regret
And burdens that can’t be
Shaved free
Speak of my mind
Leave the body behind
How hard does it
Have to be?
-Dallas Volk
TIME FRAME I construct things Like my Dad Build up theories I have We both focus- But I tinker in my brain And the world gets left behind Sometimes I run With what I find Hoping it will fly Like a model airplane The dreams released Eventually come crashing Down Gathered broken pieces Stowed away… Forgotten now Father framed himself Out of the picture In many ways, I guess I’ve done the same Struggling to sustain A steady solitude No time or distance Great enough to ease the pain
-Dallas Volk
DRIFTER
In my memory… like a song You linger on But I don’t want to hear you fade away If an image of your face Could live inside me Sooner than known- so would it escape If you were just a gypsy I would follow in your wake Willingly accept whatever fate For a sliver of your time I’d let you under my skin While fearing that I reach for love Too late
-Dallas Volk
Tuesday, July 8, 2014
Right Pissed. by Nathaniel Allen
After reading up on NLD and aspergers and also hearing from people in the know I think I can say that I might be an aspie. I was not diagnosed as being autistic or aspie as a child because of my reading comprehension and my ability to communicate effectively through writing and speech. However, I must note that socializing, body language, abstract thinking, mathematics, "taking a hint" etc, were retarded. Now I know people think of "retarded" as a bad word. People get their knickers in a knot about it because it has been used as an insult. I don't care if people call me retarded because in other ways I am more advanced then they are. I have different gifts and skills and so do they.
I am not sure but I think that "retarded" simply means something is delayed or slow. How much effort would it be required to not get pissed over one word? I have been given the label of "crazy" yet I don't go on a crusade to make sure no one uses that word. Its bloody ridiculous. I am more concerned over someone being physically harmed or berated or lambasted or demonized. One word does not easily describe a person and if you, my readers, ever have been given a negative label just know that the particular person that labelled you probably is insecure and has some sort of deficit in his/her life. People do not attack others for no reason. Its very likely that someone will be belligerant if they are experiencing trouble of their own.
****
The more I try to plug into this world the more I hate it. I can't stand all the nonsense that is spewed on a regular basis by pundits and people "in the know". I have tried to care about the planet at large and people of all nations and belief systems. But my compassion no longer exists for those that harm people because someone disagrees with their doctrine and it is downright maddening. Religious extremists, political extremists, bankers, military leaders, governors all piss me off.They take advantage of the trust and kindness shown to them. I feel as though I can't trust almost anyone because I have been taken advantaged of in the past or used as some sort of "buddy" or patsie. The friends I have tagged in this note are all people thatt I have had good conversations with and that I respect for one reason or another. I don't respect people just because it is what everyone else is doing. I don't respect people because they are part of a trend. What I observe, what I hear, what I see from people is what determines how I address that person.
I have found is that there is a very small amount of people of high intelligence and skill who easily manipulate the stupid and ignorant. They easily manipulate and educate people through the schools and media in a manner that will make them produce capital through their labour. The mass media is very much like that which was show in George Orwell's 1984. It is there and its always on all the time and people sit and just watch it for hours on end.
We do have the "two minutes hate" and a lot of propaganda through advertisements on youtube for example such as "Gateway Facts.". Its bothersome. I've tried to disconnect because my health is more important than correcting someone on facebook or reddit. I am starting to feel old again and I have gained some wisdom but in general I do not think I am anywhere that I should be. Even writing this novel of sorts is not wise. Oh well.
I am frustrated that people simply give up their dreams and just work like a slave for people that do not care about their well being and do not give them opportunities to advance and to create. What bothers me the most is that I have been given some opportunities but not on my terms but someone else's. I have to shut up and stick to someone's plan otherwise I do not get to benefit from work. Being paid and using that money is a good thing in some ways but a person should be able to work at something that is rewarding. If working at a grocery store is someone's dream, by all means help that person reach that goal. But those with gifts need to be encouraged to express themselves and in a constructive manner. Its the people that feel cheated by the school system and the adult world system that cause a lot of trouble. There are too many people, myself included that feel helpless and trapped. Something has to give eventually. It will happen, people will act like chimpanzees eventually.
I am not sure but I think that "retarded" simply means something is delayed or slow. How much effort would it be required to not get pissed over one word? I have been given the label of "crazy" yet I don't go on a crusade to make sure no one uses that word. Its bloody ridiculous. I am more concerned over someone being physically harmed or berated or lambasted or demonized. One word does not easily describe a person and if you, my readers, ever have been given a negative label just know that the particular person that labelled you probably is insecure and has some sort of deficit in his/her life. People do not attack others for no reason. Its very likely that someone will be belligerant if they are experiencing trouble of their own.
****
The more I try to plug into this world the more I hate it. I can't stand all the nonsense that is spewed on a regular basis by pundits and people "in the know". I have tried to care about the planet at large and people of all nations and belief systems. But my compassion no longer exists for those that harm people because someone disagrees with their doctrine and it is downright maddening. Religious extremists, political extremists, bankers, military leaders, governors all piss me off.They take advantage of the trust and kindness shown to them. I feel as though I can't trust almost anyone because I have been taken advantaged of in the past or used as some sort of "buddy" or patsie. The friends I have tagged in this note are all people thatt I have had good conversations with and that I respect for one reason or another. I don't respect people just because it is what everyone else is doing. I don't respect people because they are part of a trend. What I observe, what I hear, what I see from people is what determines how I address that person.
I have found is that there is a very small amount of people of high intelligence and skill who easily manipulate the stupid and ignorant. They easily manipulate and educate people through the schools and media in a manner that will make them produce capital through their labour. The mass media is very much like that which was show in George Orwell's 1984. It is there and its always on all the time and people sit and just watch it for hours on end.
We do have the "two minutes hate" and a lot of propaganda through advertisements on youtube for example such as "Gateway Facts.". Its bothersome. I've tried to disconnect because my health is more important than correcting someone on facebook or reddit. I am starting to feel old again and I have gained some wisdom but in general I do not think I am anywhere that I should be. Even writing this novel of sorts is not wise. Oh well.
I am frustrated that people simply give up their dreams and just work like a slave for people that do not care about their well being and do not give them opportunities to advance and to create. What bothers me the most is that I have been given some opportunities but not on my terms but someone else's. I have to shut up and stick to someone's plan otherwise I do not get to benefit from work. Being paid and using that money is a good thing in some ways but a person should be able to work at something that is rewarding. If working at a grocery store is someone's dream, by all means help that person reach that goal. But those with gifts need to be encouraged to express themselves and in a constructive manner. Its the people that feel cheated by the school system and the adult world system that cause a lot of trouble. There are too many people, myself included that feel helpless and trapped. Something has to give eventually. It will happen, people will act like chimpanzees eventually.
Overall I think I am growing up and I ask for help and understanding as I go through the process of reconnection. Please be patient with me, I have a lot of heavy shit on my mind and its difficult at times to even take care of my basic needs. I am just too depressed to care some days. It will take time. A lot of time. I am learning albeit slower than average.
-Nathaniel Allen
Wednesday, June 11, 2014
Movies! -by Neil McVilly
I watched Rosie's video on Youtube "Accomodating and managing cognitive variance" (*click on it to view*)
This got me thinking about a long-standing issue I've had, more marked in my earlier years, but I still struggle with a little bit at times.
As a child, I seemed to have a lot of trouble following and keeping up with the plot when watching certain types of movies. I don't recall any trouble with simple tv programs like cartoons, Sesame Street or Playschool or TV soaps of my era (Family Ties, Neighbours, etc)
It was the movies with more intricate plots or a lot of fast dialogue that proved the most challenging.
It may be worth mentioning I am short-sighted and did not get glasses until early high school. Possibly this may have compounded my processing challenges even after getting glasses and learning how to put my improved eyesight to good use.
Mum was puzzled and at times driven up the wall by my incessant questions during movies.
What's happening? Which lady is the bad/evil lady? Where are they going now? Was that the same man he was talking to before or is that a new man?
Mum could not understand whether the problem was poor attention or some other processing issue and to this day I am not sure what the cause was or why things have gotten a lot easier as an adult.
One strategy which helped me a lot was re-watching some shows my sister taped on our video recorder. I would usually re-watch the show on my own without distraction from others and might need to rewind parts until I picked up all the dialogue and put it into context. It would also help me get my head around the more intricate parts of the plot, with a few twists and turns, or more complex social interactions.
As a final note, I've enjoyed revisiting some of my childhood movies many years later, not only to take a trip down memory lane, but to see how much I missed as a child! I now have the advantage of maturity which helps to understand more complex social interactions which went totally over my head as a child.
My computer allows me to replay videos very easily, I can "cheat" on IMDB if I need a little help following a more intricate plot, or google for a history lesson or whatnot. If I feel inclined, I can also download English subtitles for movies which seem to help me with verbal processing when there is a lot of fast talking dialogue.
In any case, movie watching has become a fun hobby in my leisure time :)
I'd be very interested to hear if others have experienced similar challenges.
-Neil McVilly
Tuesday, June 10, 2014
Misconceptions still dominate the understanding of autism
Geneticist gives lukewarm "Autism Talk" with the usual, cookie cutter passively demeaning terms, on Ted Talks.
I comment on the website and it seems it has been removed.... I still have it saved though....
This was a very disappointing talk... It's amazing how little it is known and how many misconceptions still dominate the understanding of autism, including in this TED talk... For example, the incidence is not lower in girls, the behaviors are simply different because the female brain is fairly different than the male brain. A good example: my wife. I compare my wife side by side with my son, who is moderate to severely autistic, and they have exactly the same problems and very similar behaviors. But because of our understanding of a girl's behavior relative to our understanding of boys (what we find socially "normal" for gender roles), my son was diagnosed at 3 and my wife at 25.http://www.dailymail.co.uk/.../Thousands-GIRLS... Chung's speech is just a random compilation of widely distributed data, nothing really interesting, with no insight. Here's some insight from a "savant". "Autism" is characterized by a powerful brain that perceives a lot more than the "neurotypical" and can process information far faster... my brain can perceive a lot of interactions that most "neurotypicals" can't. While my information processing speed is several times faster than that of a "neurotypical" (I can write a whole book in my head in just a few minutes), the number of perceptions is so much higher that it still takes me longer to process all the information. That is the reason why we get overwhelmed easily, while we have sensory sensitivities, executive functioning issues, communications issues, why autism is related to ADHD and so on... You don't have to only take my word for it either... if you also fall for the fallacy of expertise, you can check out this neuroscientist (he has the magical piece of paper) who says the same thing: https://medium.com/.../the-boy-whose-brain-could-unlock... It would be really REALLY helpful if people would actually ASK us about our experiences with autism...
Nelson Guedes
I comment on the website and it seems it has been removed.... I still have it saved though....
This was a very disappointing talk... It's amazing how little it is known and how many misconceptions still dominate the understanding of autism, including in this TED talk... For example, the incidence is not lower in girls, the behaviors are simply different because the female brain is fairly different than the male brain. A good example: my wife. I compare my wife side by side with my son, who is moderate to severely autistic, and they have exactly the same problems and very similar behaviors. But because of our understanding of a girl's behavior relative to our understanding of boys (what we find socially "normal" for gender roles), my son was diagnosed at 3 and my wife at 25.http://www.dailymail.co.uk/.../Thousands-GIRLS... Chung's speech is just a random compilation of widely distributed data, nothing really interesting, with no insight. Here's some insight from a "savant". "Autism" is characterized by a powerful brain that perceives a lot more than the "neurotypical" and can process information far faster... my brain can perceive a lot of interactions that most "neurotypicals" can't. While my information processing speed is several times faster than that of a "neurotypical" (I can write a whole book in my head in just a few minutes), the number of perceptions is so much higher that it still takes me longer to process all the information. That is the reason why we get overwhelmed easily, while we have sensory sensitivities, executive functioning issues, communications issues, why autism is related to ADHD and so on... You don't have to only take my word for it either... if you also fall for the fallacy of expertise, you can check out this neuroscientist (he has the magical piece of paper) who says the same thing: https://medium.com/.../the-boy-whose-brain-could-unlock... It would be really REALLY helpful if people would actually ASK us about our experiences with autism...
Nelson Guedes
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