Tuesday, September 29, 2020

A particular kind of bullying

Scott Roebuck on the nature of how non autistic typical folk - especially in authority - belittle and bully autistic adults and others who may have challenges and disabilities but are very smart;

"The issue is that they want you to not have any positive attributes; they need you to be something to be looked down upon and/or pitied. They can't accept that you simultaneously face all these issues/challanges and still end up being better than them at something. In their minds it demeans their accomplishments (or lack there of) in life. Rather than applaud your success despite the challanges; they instead try to undermine it. Rationalizing that you are either lying about the success; or did accomplish something - but lying about the challanges faced; or they have to accept both, but just write you off as some sort of freak which "doesn't count". I have seen this over and over again. Don't let their attempts to save their own fragile egos play negatively on yours."

Thursday, October 6, 2016

Harmful "help" - remedial training is needed.

For a female aspie friend who just came out to a "helping" organization ie. trying to get support for a sexual assault, and instead she was misconstrued somehow, thus discriminated against, and further hurt. (I know all too well what this is like) I'm pissed off:
"Help" places often discriminate against and mistreat aspies, especially aspie women (because of their denial problems re: aspergers' presence in women, and by the way I'm going to say aspergers though I know it's not in the DSM anymore because I feel it describes things better, because we're referring to insidious autism with verbosity - the presence of such a thing is often denied in women especially - but ironically and hypocritically, they discriminate against the very thing they're denying!)
These "helping" programs, places and figures tend to do the very opposite of help, they further harm and hurt. Sometimes I call it "unhelpful help" and sometimes it's flat out "harmful help." It's disgusting, and going to them about a serious matter only to get wing-slashed (alluding to Malificent) is a prime and severe example of autistic person abuse.
These outfits, and all social systems for that matter, badly need remedial training ie. how to handle a verbal autistic adult who seems "normal" to them but will have differences and disabilities with expression and communication, and therefore will present with their dilemmas in a divergent manner.
They need to understand that divergent presentation and affect in reaction to a serious problem does NOT equal illegitimacy of the problem, and in fact, the autistic adult is often *more* vulnerable if anything.
Therefore, undermining the autistic person and their problem parallels structural violence via neglect and/or abuse. Whether they intend for it or not - and they need to see that this is the result, and how that must feel to an autistic person. It is *so* traumatizing. Being traumatized on top of being traumatized, it's horrendous. It's like flicking acid on a wound. Scar tissue gets really deep and damaging that way you know.
They need an educational program and all need to mandatorily go through with it. Remedial training. It'll be a great day when that happens. #autistic #aspergers #women #neurodivergent #disability #sexualassault #ethics #humanrights #help #selfhelp #advocacy 

Rosie G.




Tuesday, June 14, 2016

Observe what happens to a lot of rainbow zebras

From Youtube.........
 

I'm in the same places with a similar diagnostic spread. Honestly at this point I've basically given up on ever getting treatment. I've been stuck in a continuous cycle of having to try to prove over and over that I am sick. It doesn't matter that I have evidence and tests. I've just accepted that my life is over. I'm 27 this year, I've been severely ill since I was 20. The harder I fight the more they treat me like I'm just crazy. i'm diagnosed with somatoform now despite the several positive test results, because I'm distressed over the fact it's been 6 years and I'm getting less treatment then I was in the beginning despite getting sicker. So I'm now blacklisted from medical help too, because the treatment for somatoform is refusing you medical care. Honestly I don't care anymore. I was pretty mentally healthy but now I just want to die. Like that is now my life goal. Die. I can't kill myself because if I fuck it up they can lock me in the hospital but they have taken someone who was doing pretty ok in all aspects of life, and made me a complete mess. Then blamed me for having severe PTSD from 6 years of gaslighting and being blamed for not being able to overcome POTS and EDS with diet and exercise.

+kaorugirl180 I'm so very sorry. Your story absolutely disgusts, enrages, and saddens me for you. I know exactly how you feel, as you know, it happened to me. But you are articulate and you did word it very well..probs exactly why they had to blacklist you, I suppose. I caught them with their pants down trying to do this to me, and I have had some success, maybe because I did put it "out there" in social media a bit. Though this can be a double edged sword, it's a power we can excercise when all else fails. Though I'm very sick myself, I am slowly getting somewhere (hopefully on time) and, I want to help you, and other people for in which this abuse happen to (and that's a lot) in the ways I am able... do you have an official EDS diagnosis, and POTS diagnosis. If so, you have more power than you think. (even if you don't, it's not hopeless, you can still get a dx) .. The grassroots activism re EDS and similar is getting stronger. We who are "getting somewhere" are coming to the aid of our fellows who are experiencing the brunt of medical abuse. There are organizations you can connect to, who can help you connect with people in your area that can help advocate. I will write you a staunch letter to do my part, if you like. This has got to stop. We will survive and we will put this to a stop so others never have to endure such horribly abusive and callous antics.

Thursday, April 7, 2016

Meditation for aspies/auties - A helpful and practical approach , by Leo Nikol

Meditation For Aspies

The Room

My room is where I love to get some meditation done. For an Aspie there are many methods and ways to bring about the calming of the nervous system, the relinquishment of unwholesome thoughts, dispulsion of anxiety, or even cultivation of mental discipline. But first and foremost, my "set and setting" is my room: "The Room."

I love the claustrophilic coziness of my room. My room gives me a refuge from the cacophony of the city; my room brings me comfort and safety the likes of which I could not possibly find anywhere else in this world.

For Aspies our room is our home. Leaving it means traveling to a foreign country. As I sit in the quietness of the insulation, I still gaze out my window and appreciate the golden sun set. The beams flow into my entire domicile, brightening all the walls and objects in lucid brilliance. Just enjoying that moment is enough.

 The Meditations

Don't let images of an exotic oriental lotus posture be conjectured in your minds. I'm no wishy-washy, otherworldly, and outlandishly spiritualistic New Age guru, but I love a nice deep contemplation in the aloneness in my room. All that common talk of "mindfulness" and "staying in the moment" are all and good - and I certainly concur with those - however, for Aspies, remaining in the moment-by-moment awareness of our minds and bodies, however calming and wholesome, is simply not enough. Following the breaths in the process of inhalation and exhalation, or counting them may be a formidable feat of mental discipline but it has its own limitations. Let me explain.

For Aspies, we can't just shut off our thoughts and stay focused "in the moment." We cannot just curb our minds from forming thoughts, concepts and ideas as is the goal of meditation - whether it's called "mindfulness" or "zen;" We cannot just relinquish our self-stimulatory repetitive behaviours (i.e. "stimming") because these are the very tendencies and proclivities of our autistic brains. Shutting off our so-called running thoughts would be to shut off the vital part of ourselves; quieting our "discriminating intellect" is stifling to us; getting rid of our obsessiveness is definitely not the autistic way; stilling our stims takes away our self-soothing mechanisms which are both natural and necessary to us; likewise, remaining in the "here and now" rather than "then and there" is very limiting to us - in fact, many times the Aspie mind needs to dwell in both dimensions, sometimes even simultaneously: because hey, this is autism.

So, the above form of meditation, however beneficial in certain ways, can be something not-very-wholesome to us, since creative thinking and endless thought processing is the very heart of who we are: the autistic mind inclines towards ideations, mental conceptions and abstractions, analysis, mentation, creativity, and forming notions through the intellect. These are the very life-blood of the autistic mentality. we cannot afford to dispense with those essential components of ourselves.

This sort of meditation is good for neurotypicals whose minds are diffused all over the place, and who lack a focused mind. Do we really need that form of meditation then? I mean if there is one great strength we Aspies have is our single-pointed mind. Our mind obsesses and fixates insatiably, we don't need any special effort to get our minds concentrated in one thing, for we already excel in that very thing. If the goal of meditation is to bring the mind into "single-pointed mindedness" as the Dalai Lama preaches, then we don't need it because we already have that quality.

Therefore, living and placing our minds outside of our autistic boundaries is disrespectful to ourselves and it will only take us to the brink of a severe autistic burnout or even a meltdown.

Ahh, so what forms of meditations can be of benefit to us? Well, like I said, the above meditation can be good for us, taken in moderate and appropriate measure. I, for instance, like to do some mindful meditation - or a form of zazen - through following my breath before I go to sleep sometimes - though I like to do this lying down in my bed rather than sit in the cliched lotus posture we see in popular culture.

I find chanting or mantras to be more up our alley since they can be used as excellent stimming tools - and they are to an autistic. I used to chant repetitive phrases to calm myself down when I was a kid and sometimes even in my adulthood. So anything vocal or repetitive is good.

I also heard of monks and nuns and even charismatic Pentecostal Christians rocking back and forth to induce calm and even a form of a trance. That sure works for us since rocking back and forth is instinctive to us.

Concentrating all our energies on single thought, image, or idea that we're obsessed with or are especially interested in (e.g. our special interest topic) can also be construed as a form of meditation. Visualization can also accomplish that end for those who are able to mentally visualize vividly and naturally.

Pacing around the house or some enclosure where we can make rounds and circumambulations are also good form of meditation for autistics - something else that both naturally stems from autistic brain and also that is practiced by meditators in many different traditions (cf. "walking meditation" in Buddhism, Hinduism, Jainism, and Christian monasticism).

What I especially like is what's called "body scan" where I lay still in bed, relaxing every muscle in my body through concentrated effort while keeping my mind alert and awake - sometimes this could induce what's called an "out-of-body-experience" or as I like to call it astral projection. Lucid dreaming is also another form of this type of meditation.

I could certainly go on for hours. When dealing with meditation it is important for Aspies to keep the above information in mind. You do not want to do anything that would go against your basic neurology. Respect your habits and tendencies, know that there is nothing you can do to thwart your autistic brain. We must rather harness it, strengthen it, and expand on it. By being more of ourselves is better than running away from it or masking it. Remember, stimming itself is a form of meditation so consider yourselves master meditators already!

Wednesday, March 9, 2016

The Other - by Heather M

Picture in your mind, a completely unique creature. Get creative. Is it tall or short? Fluffy, scaly, or smooth? Maybe it has a tail or a horn. Give this species a name. Have you got a name picked out? Good.

Now imagine this creature, somehow trapped inside a human body all its life.

As a baby, things seem fairly average, but then life starts to get tricky. Especially when school begins...

Things that come easily to other children, don't come easily to this creature. She's no good at PE, because the body she was meant to have had a lot more legs, or a different way of balancing. Writing and crafts are challenging because her hands should have been tentacles, or claws. 

She doesn't always understand the other children, and they don't seem to like her very much. This is not the language she was meant to speak.

But this little creature is intelligent and motivated. She works very hard. She feels misunderstood, and wants to communicate, so she becomes obsessed with words and language, and spends a lot of time reading. She develops an impressive vocabulary, but the other children still don't seem to like or understand her. 

Her recesses and lunch breaks are spent alone, reading, or watching the other children play.

She watches the popular children, and notices that the clothes she likes to wear are different from what they are wearing. That must be it! She tries to pick out clothes that the other children will like, but she never seems to get it right.

She notices that the popular students are good at sports, so she tries to learn all kinds of sports. Sometimes she practices for hours on end. She has improved for sure. She can catch a ball (something she could never do before). But being able to catch a ball (which was a huge accomplishment with her would-be tentacles) doesn't make her popular. In fact she is still the least talented kid in her PE class.

She doesn't really like who she is. She doesn't like her hair because it doesn't look like the popular girls' hair. If she had thick hair, or curly hair, the other children would like her. She doesn't like her name, Heather, because all the popular girls have better names. She wishes her name could be Amy, or Ashley, or Ann. She spends a lot of time imagining she is someone else.

School is a daily struggle. The teachers say that she is lazy. Clearly she is very smart, so she shouldn't have any trouble doing her schoolwork. Perhaps the natural environment of the creature she was meant to be is just not as loud, or as bright as a classroom, but that never crossed the teachers' minds.

She feels ill often, especially at school. Sometimes she can gain some strength back by lying down in the nurses office, her favourite place in the whole school. The nurses office is always quiet. All of the surfaces in the room are cool and clean, and it is usually dark. Heather enjoys lying back on the vinyl cot, and counting the ceiling tiles over and over again. The result is always the same, and this comforts her. She lies still and silent, actively listening for the occasional echoing footsteps of a passerby heading to the washrooms.

The washrooms are quiet too. Not nearly as nice as the nurses office, but they have to suffice when the teachers stop allowing Heather to visit her sacred space. They tell her that an illness that occurs at the same time every day, is no illness at all. Especially if it is time for PE.

To escape, she spends a lot of time in a world of her own imagining. A world where she can do anything and be anyone she wants to.

She develops an interest in acting, and she gets pretty good at it. It seems to help her act more like the other kids do. Heather is determined to make friends; she wants so badly to play with the other children, instead of watching them from afar. She practices using the kind of words they use. She tries to be like them in every way. It seems to help. She makes one or two close friends. They are not popular kids, they are outcasts like her, but that's ok...

Heather learns that it helps to be agreeable. If someone says they don't like peas, she says she doesn't either. If they say they like the colour purple, she says she likes it too.

There's a girl in Heathers class who seems to dislike a lot things and a lot of people. Her name is Christa. She has beautiful thick hair the colour of caramel and freckles on her nose. She always says what she's thinking, and she has five or six close friends. Heather wants to be her.

They become friends. Heather can't believe she has a friend who is so cool. Sometimes Christa even lets Heather brush and style her long, thick hair.

Christa plays tricks on Heather, and calls her mean names sometimes, but that's ok, because they are friends, and she says she's only joking. Heather tries her best to be agreeable. After all, she is lucky to have a friend like Christa.

Over the years friends come and go, some are true friends who love Heather for who she is (or appears to be) and some are "cool Christas", the ones she's dying to impress.

But having friends doesn't feel as great as she expected it to. She's become so good at acting, that even her true friends don't really know her. They don't know she's a pretender, a fraud, an outsider. Whether or not people love her is irrelevant because of her deep dark secret. She is an "other". 

In school, Heather struggles to do what's expected of her, and then all but gives up. Deep down, she knows she is bad and wrong. She feigns apathy, pretending she doesn't care about sports or school or being popular. She refuses to participate in gym class because she's terrified of being humiliated, but she doesn't tell the gym teacher that. Flat out refusal to participate is all the explanation he gets. She stops doing her homework, except for English homework, since her best is never good enough anyways.

Eventually, the feigned apathy becomes real. Nothing brings her joy anymore, not reading, or writing, or music. One evening her parents order takeout from her favourite restaurant. Fettuccine Alfredo. Her favourite dish. She looks down at her plate, realizes it brings her no joy, and begins to cry.

The floodgates are opened. For the next week or so she spends more time crying than not. She cries in the shower, on the bus to school, in the classrooms. Some days she doesn't go to any classes because the other students tease her for crying all the time. She cries herself to sleep every night.

Heather is afraid. When she reaches out to friends and family, she's accused of being dramatic. Her loved ones insist that these feelings are normal for teenagers, and nothing is wrong. She is instructed to "suck it up".

Heather wonders what it will take for people to understand that she is not ok? She begins to behave erratically. She no longer cares about fitting in or having cool friends. Sometimes she darts randomly into traffic, praying that she will be hit by a car. Eventually, she is admitted to hospital. She is upset and afraid, but she also feels relieved. Now they know something is wrong, now they will help her!

The doctors know something is wrong, but they don't know what. They say that she is depressed and they give her medicine. Medicine that is not made for the creature she was meant to be. Medicine for humans who are depressed....

Her mind and body react violently to the assault of strange chemicals flowing through her. Any ounce of self control she had is lost. The erratic behaviours worsen, so the doctors increase the dose. Heather soon becomes aggressive, hurting herself and those around her. Her clothes are taken away and she is given a pair of yellow pyjamas.

She is led to a small, brightly lit room, and a heavy door is shut and locked behind her. She is alone. Although this room is similar in many ways to the nurses office of Heathers childhood school, with its cool, clean surfaces, she finds no peace here. She screams and sobs hysterically, pounding her fists against the door, before crumpling, exhausted, onto a cot in the corner. She is disappointed that the ceiling is smooth, and not tiled, like the rest of the hospital.

The doctors decide that anti-psychotic medicine is the best course of action. The effects of the various drugs they try make the next 5 years or so a blur of hysterical crying, blue pyjamas, and counsellors telling  Heather that getting well is a choice, that it takes effort, and that she must "do the work".

At some point during this blur, the doctors (failing to see that she is a strange creature trapped inside the body of a human, violently reacting to drugs that aren't meant for her) decide that she has a personality disorder.

"Borderline Personality Disorder is our working diagnosis", the psychiatrist explains to Heather and her mother. Heather fidgets with the elastic waistband on her blue pyjamas, as tears fill her eyes, obscuring her vision. She looks up at the lights on the ceiling to watch how they change shape, bending through the prism of tears, and tries to tune out the sound of the doctors voice, as he continues...

"People with this condition typically"...."strain on the caregivers"....."emotional manipulation".... "attention seeking behaviours".... "until she wants to get better, there is little we can do."

Heather shoots the psychiatrist an icy glare. How dare he accuse her of wanting to live in this torturous hell?

"Do you have something you wish to say to me?" The psychiatrist asks, smiling sweetly as though he hadn't just called her a manipulative bitch who doesn't want to get better.

His tone throws her off. She tries to scream at him, but chokes on her words.
"I, I do want to get better" she croaks out meekly. "That's good!" he says in his most patronizing tone, and chuckles to himself, "That means we won't have any more incidents like yesterday, right?"

Heather tries to remember what happened yesterday and is immediately overwhelmed by scattered images that make no sense. She becomes frozen, like a statue, unable to form a response.

"Well?", the psychiatrist leans forward in his seat, looking into Heathers eyes as she tries not to feel him looking at her.

"No" she whispers. "No."


by Heather M

Monday, February 8, 2016

Like walking on needles while dizzy. by Natasha P.

"Good old meltdowns. It's hard for people to understand/relate to the pain they have not experienced in a certain context. Doesn't matter if you are on the spectrum or not, another can discard your agony as fictional, because they cannot imagine what it feels like or it isn't rationally possible for them. The same experience for two people can vary greatly in stress levels. 

I've had meltdowns from emotional overload forever and decided eventually to suppress/hide them for years to avoid "bothering" others (BAD decision). It's like walking on needles while dizzy till you can exhale and melt down properly (does it sound similar at all?). 


As long as people can understand that a meltdown comes from extreme stress and pain, I have faith that they will relate, because everyone has experienced emotionally painful and devastating things at least once in their lives. For someone with autistic traits, it can be a daily experience. 


Obviously, such high levels of stress need to resolve somehow! I do hope this issue will find its proper definition and description in the world and will be treated without stigma."


- Natasha P.


Tuesday, January 26, 2016

Trying To Find A Balance, by Kristin N.

"We have to start communicating with one another if we are ever going to truly understand and be able to accommodate the needs of others. Too many of us suffer in silence, because when we try to speak up, we get shut down. It’s like no one really wants to listen, and they’re only out for themselves. All it takes is just a little compassion and the willingness to come up with solutions that will be mutually beneficial. I feel like this would solve a lot of problems in our world. 

We think that there’s no way everyone could get exactly what they need, but that’s not true, it just may not be in the way you had anticipated it, and you may have to find a balance with the needs of others. We make things out to be much more difficult than they really are. We say that it can’t be done, when we haven’t even really tried. You can’t just attempt to do something once and hope everything changes overnight. It’s a gradual process, that needs time and consideration. 

I guess people just don’t want to take the time to do things a different way. They would rather try to find a quick fix that doesn’t actually do anything to fix the things that are broken. We have a broken system that we keep trying to repair. But the truth is, the system needs to be rebuilt completely from scratch. 

The first thing that comes to mind is how much time it’s going to take. Time means nothing when it comes to creating a better life that everyone can enjoy to the fullest. We are already wasting time by doing nothing. We have to take responsibility for ourselves and the planet. The very first thing you can do is work on your own personal transformation which inspires others to do the same. 

You can’t make changes if you do things the same as everyone else. We all have our own unique purpose and they are equally important. We need to embrace our differences, because there is only one YOU on this planet. YOU are the only person who can do what YOU were meant to accomplish. No one else can take your place. Your experience is vital to the healing of every last soul that walks the earth, so make the most of it, and don’t ever give up!"

- Kristin N.